Run Bell Run
Scott Bell is running, and running and running some more. It’s obvious he likes to run, but that’s not the sole motivation moving his feet ever forward. Scott, diagnosed with Cystic Fibrosis at birth, is running for a cure.
In June, he started Run Bell Run, a one-man fundraising effort that allows people to pledge money for every mile he completes, and every cent goes directly to the Cystic Fibrosis Foundation. His goal? Run 1,000 miles in a year and raise $50,000. So far, he’s right on track. Scott shared his inspiring story with us, and he’ll be offering readlean.org readers some running tips in the coming months as we check in on his progress.
What is Cystic Fibrosis?
CF is a genetic disease that affects many major organs, but the lungs in particular. It causes a build up of sticky mucus in the lungs, and in that mucus a bacteria grows causing ongoing infections that damage and scar the lungs. The mucus also makes it hard to breathe. There is no cure. When I was born, my parents were told my life expecantcy was 16. But since then, there has been a lot of progress made on drugs to treat the disease. The life expectancy for those with CF now is the late 30s, and new drugs are are continually being developed. There more now in pipeline than ever before. But, since there aren’t that many people with CF, drug makers don’t have a huge incentive to research and create these new drugs. That’s where the Cystic Fibrosis foundation comes in. They raise money and partner with drug companies to keep these advancements coming.
I’ve been running for a long time. The best thing I can do for my own health, aside from the medicines I take and physical therapy I do, is run. It is great for anyone’s lungs; it exercises them. Plus, I can clear out some of the CF mucus by moving around and breathing heavily; it helps loosen it.
Why Run Bell Run?
Since I already run, I figured running would be a great avenue for fundraising. It grabs attention since I do have CF (it surprises many that I can run like I do), and the 1,000 mile goal adds a kinda “wow” factor. And it will do more than raise money, I hope. I also want the effort to raise awareness of CF. The CF Foundation does a great annual fundraising walk called Great Strides, which I heavily support, but this gives me a way to keep the awareness going all year long.
How can folks help?